Category: Musings

Day 1 – Post Myasthenia Crisis

First, let me point out that I am one of the lucky pioneers that get to (small breath, softly) “…work remote…” I enjoyed this status on and off while working … Read More

Fairy Lantern

You can hear how messed up my voice is here. Ella took  it right in stride. Smart kid. Nothing deflects her joy. Her meemaw Tammi helped her make this – … Read More

Gift and Warning

I never thought I’d be a good parent, so I avoided that route in life. Fate had other ideas. I subsequently met, married, and lost two wives. Their names and … Read More

Love Prevails

Love Prevails When I use my greatest strength all of my heart to push the darkness away triumph is sweet When I feel the pain searing hot, but no longer … Read More

Fireworks Frustration and a Proposal

First posted on Nextdoor in response too all the citizens complaining about firework noise, pet and human discomfort. There’s solutions. Let’s find one. I love fireworks but NOT IN MY … Read More

LOMG

LOMG – Late-Onset Myasthenia Gravis https://jamanetwork.com/journals/jamaneurology/article-abstract/774608 Late-Onset Myasthenia Gravis – A Changing Scene Johan A. Aarli, MD Author Affiliations Article Information Arch Neurol. 1999;56(1):25-27. doi:10.1001/archneur.56.1.25 Abstract The prevalence of myasthenia gravis (MG) … Read More

Apparently, I’m Really Old

I was (not greatly but bemused) surprised that some of my health providers didn’t know what my condition was – it’s that rare. 14 – 20 in 100,000 (I had … Read More

IVIG day three

Had my third infusion of intravenous immunoglobulins today. My breathing has improved markedly and my speech is getting clearer. The staff here at Longs Peak Hospital in Longmont, CO are … Read More