Category: Photos

Nibling

A gender-neutral term for a niece or nephew. To all of my niblings. I’d love to hear from you!

Fairy Lantern

You can hear how messed up my voice is here. Ella took  it right in stride. Smart kid. Nothing deflects her joy. Her meemaw Tammi helped her make this – … Read More

Gift and Warning

I never thought I’d be a good parent, so I avoided that route in life. Fate had other ideas. I subsequently met, married, and lost two wives. Their names and … Read More

Love Prevails

Love Prevails When I use my greatest strength all of my heart to push the darkness away triumph is sweet When I feel the pain searing hot, but no longer … Read More

Fireworks Frustration and a Proposal

First posted on Nextdoor in response too all the citizens complaining about firework noise, pet and human discomfort. There’s solutions. Let’s find one. I love fireworks but NOT IN MY … Read More

LOMG

LOMG – Late-Onset Myasthenia Gravis https://jamanetwork.com/journals/jamaneurology/article-abstract/774608 Late-Onset Myasthenia Gravis – A Changing Scene Johan A. Aarli, MD Author Affiliations Article Information Arch Neurol. 1999;56(1):25-27. doi:10.1001/archneur.56.1.25 Abstract The prevalence of myasthenia gravis (MG) … Read More

Apparently, I’m Really Old

I was (not greatly but bemused) surprised that some of my health providers didn’t know what my condition was – it’s that rare. 14 – 20 in 100,000 (I had … Read More

Status Update

I am home – Tammi and the livestock are palpably relieved, as is the fat man. I am able to perform infant-level sustenance functions (swallow, chew, cough, drool {NAILED IT} … Read More

White Coat Cadre

This is an open letter to the staff at Long’s Peak Hospital.

Gravis News

My brush with death came recently, Here’s how it all unfolded.

Dysarthria

Dysarthria is a motor speech disorder in which the muscles that are used to produce speech are damaged, paralyzed, or weakened. The person with dysarthria cannot control his or her tongue, larynx, vocal cords, and surrounding muscles, which makes it difficult for the person to form and pronounce words.

Merry Christmas 2019

Merry Christmas 2019! Best Wishes to all from Doug, Tammi, Dozer, Kona, River and Kinkles It’s been a long, difficult year and we’re ready for ’20! Thank you all for … Read More