Love Prevails
Love Prevails When I use my greatest strength all of my heart to push the darkness away triumph is sweet When I feel the pain searing hot, but no longer … Read More
Category: Photos
Fireworks Frustration and a Proposal
First posted on Nextdoor in response too all the citizens complaining about firework noise, pet and human discomfort. There’s solutions. Let’s find one. I love fireworks but NOT IN MY … Read More
LOMG
LOMG – Late-Onset Myasthenia Gravis https://jamanetwork.com/journals/jamaneurology/article-abstract/774608 Late-Onset Myasthenia Gravis – A Changing Scene Johan A. Aarli, MD Author Affiliations Article Information Arch Neurol. 1999;56(1):25-27. doi:10.1001/archneur.56.1.25 Abstract The prevalence of myasthenia gravis (MG) … Read More
Apparently, I’m Really Old
I was (not greatly but bemused) surprised that some of my health providers didn’t know what my condition was – it’s that rare. 14 – 20 in 100,000 (I had … Read More
Status Update
I am home – Tammi and the livestock are palpably relieved, as is the fat man. I am able to perform infant-level sustenance functions (swallow, chew, cough, drool {NAILED IT} … Read More
White Coat Cadre
This is an open letter to the staff at Long’s Peak Hospital.
Gravis News
My brush with death came recently, Here’s how it all unfolded.
Dysarthria
Dysarthria is a motor speech disorder in which the muscles that are used to produce speech are damaged, paralyzed, or weakened. The person with dysarthria cannot control his or her tongue, larynx, vocal cords, and surrounding muscles, which makes it difficult for the person to form and pronounce words.
Return of the Swallows
The first day after first infusion treatment for myasthenia gravis and my swallow reflex is working again. I didn’t know how much I missed it until it was gone! What … Read More
Myasthenia Gravis
Here I am at Long’s Peak Hospital getting an IVIG infusion therapy for Myasthenia Gravis.
Homeland Insecurity
From Edward P McGinty in FL: The agents from Homeland Security visited me today. The Villages Trump Supporters want me silenced. The called the Federal Government on me. I will … Read More
Merry Christmas 2019
Merry Christmas 2019! Best Wishes to all from Doug, Tammi, Dozer, Kona, River and Kinkles It’s been a long, difficult year and we’re ready for ’20! Thank you all for … Read More
Mary Elizabeth Acridge Pitt – 4/19/1930 – 11/9/2019
It is with great sadness I received the news of Mary Pitt’s recent passing. We were friends on the social media platform Facebook for years. Loved her attitude, loved her … Read More
Wonderful Wacky Words
Bamboozled Flabbergasted Discombobulated Shenanigans Cattywumpus Lollygag Malarkey Kerfuffle Brouhaha Nincompoop Skedaddle Pumpernickel Gobsmacked Dillydally Smithereens Gobbets Dooflinkey Widget Gizmo
The Whole Story
Recently I saw one of my photos being used on the web to perpetuate a skewed narrative. This post is to set the record laser-straight again and make sure people … Read More